Shaili Kumari suffers from a rare genetic disorder called Crouzon syndrome – which occurs when bones in the skull fuse prematurely.
Shaili faces cruel taunts of ‘frog’ and ‘alien’ from other children because she has a rare condition which causes her eyes to bulge.
The bullying means Shaili does not go to school. Despite this, she has dreams of becoming a doctor one day so she can help other children with her condition.
Abnormal growth of these bones leads to wide-set, bulging eyes and vision problems caused by shallow eye sockets, and eyes do not point in the same direction.
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